The third and final part of a series analysing the British Association of CFS/ME (BACME) guidelines on severe ME. I have chosen to write extensively on this subject, as the guidelines encompass several themes that are important to me. The BACME guidelines support the biopsychosocial (BPS) model of ME, which holds that deconditioning and the … More Beneath the Surface, Part 3
There is an indescribable joy in experiencing the outside world after many months or years of incarceration. The dance of sunlight through the leaves of trees; the flicker of shadows on grass; the touch of a gentle breeze. When darkness and isolation have been the foundation of life, these simple experiences are cherished. There can … More Glimpsing the World: My Joy and Pain
When living with severe ME, making plans can amount to an act of defiance. No matter how carefully laid those plans, no matter how great the determination behind them, there is always the knowledge that they can unravel at any moment, through no fault of your own. When I began my blog last November, my … More Hidden but Still Here
A Life Hidden 